The 2-year-old Alabama boy known as the “miracle baby” succumbed to his rare and deadly condition Saturday night, the child’s father said on Facebook.
Eli Thompson was born in 2015 with congenital Arhinia, an extremely rare condition that leaves babies without nasal structures or passages, AL.com reported. The condition affects just one in 197 million people.
In a phone interview with AL.com, Eli’s father, Jeremy Finch, described his son as “very, very bright and happy, always smiling and giving everybody fist bumps.”
Finch, took to Facebook Sunday to announce Eli had passed away.
The post read, “We lost our little buddy last night. I’ll never be able to make sense of why this happened and this will hurt deeply for a long time but I’m so blessed to have had this beautiful boy in my life,” he said. “He finished his race a lot earlier than we would have liked, but it was God’s time to bring him back home. I’ll forever look forward to seeing him at the gates of Heaven waiting on me to give me another one of his famous fist bumps! I love you little man. Rest in peace with my Father.”
Eli was born on March 4, three weeks before his due date.
His mother, Brandi McGlathery, who told the Huntsville Times after he son went home later that month that she didn’t want her baby to have to go through any unnecessary surgeries
“We think he’s perfect the way he is. Until the day he wants to have a nose, we don’t want to touch him. We have to take it day by day,” she said.
According to Finch, the family is finalizing funeral arrangements.