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Castaic Family Holds ‘Halloween in May’ Party for 5-Year-Old With Rare Genetic Disorder

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Family and friends want every birthday Carter Sarkar celebrates to be extra special as he has been diagnosed with Sanfilippo syndrome, a metabolism disorder that prevents the body from properly processing sugar which is likely to kill him by his teenage years.

On Sunday, he celebrated his 5th birthday with a Halloween-themed party at his Castaic home, since he asks his parents if he can go trick-or-treating about twice a week.

The Sarkars are hoping to raise $15,000 for Sanfilippo syndrome research by Carter's birthday on May 25; you can donate on the Carter Turns 5 fundraising page. To learn more about Carter and how his family is working to find a cure for Sanfilippo syndrome, visit