Early in the pandemic, Fiona Lowenstein knew that the full story of COVID-19 was not being told.
She was 26 and healthy, and after testing positive for the virus last spring, she expected an easy recovery. But after a two-night stay in the hospital, she came home to experience severe fatigue and an upset stomach. She had a difficult time focusing her thoughts, and she was scared.
No one had said anything about these symptoms, and after posting on Instagram, she learned she wasn’t alone. As co-founder of a queer and feminist collective in New York exploring issues of health and social justice, she suddenly saw purpose in forming a new community.
Today, the Body Politic COVID-19 Support Group has registered 10,500 COVID-19 patients and their caregivers and families, who have started an independent research group and advised the National Institutes of Health. It is among dozens of grass-roots organizations around the world that have formed to make sure that a year into the pandemic — as fatigue mounts, vaccines become more available and infection rates drop — COVID-19 and its lingering symptoms remain in the public eye. Mindful of the battles that HIV/AIDS activists have fought over the years, its members know that their greatest enemies are fear, ignorance and apathy.
Read the full story on LATimes.com.